June 25Jun 25 I have not been good at coping with my other disabilities on top of my myriad of Mi...I lost 60% of my hearing at age 25. It is probably worse now, but missed my last ENT audiology test.I tend to apologise for not being able to hear well.It's very frustrating as an invisible disability.I am now dealing with a chronic pain issue,which is dismissed by people sometimes.It triggers despondency in me. A sense of intense loneliness and frustration...I have not been accepting it with " ...peace of soul" as the Orthodox morning prayer goes...Which in turn, triggers immense guilt and shame...I wish I had something more inspired, more positive to say...Just know that for those of you struggling with all manner of disabilities on top of your MI, my heart goes out to you all...and sending you empathy and strength.
June 26Jun 26 Author I totally get that @Autumn75 I wear hearing aids and can barely hear anything without them. I put subtitles on when watching TV as I can't understand what people are saying.As for managing, I don't really think about it either @Enigma I think we just learn to cope without thinking about it.I hate to be a burden to anyone so I try not complain.
June 26Jun 26 Oh, I am so sorry @Lavender that you know what it's like to be hearing impaired.I tried hearing aides years ago, but they didn't help much...And then last year theENT I saw told me hearing aides are useless for ny type of hearing loss.When I had a tv I also had the closed captioning on.My heart goes out to you.
June 26Jun 26 @Autumn75 I have severe hearing loss and have had my hearing aids for a year now. Love them. I don't feel so lost in social settings anymore.
June 27Jun 27 18 hours ago, Enigma said:@Autumn75 I have severe hearing loss and have had my hearing aids for a year now. Love them. I don't feel so lost in social settings anymore.@Enigma Oh so pleased that your hearing aides have made such a positive difference in your life!Certainly being impaired can be isolating.
June 27Jun 27 Put it this way…until a certain aspect of my physical health improves…my MH wont…it will get worse… I’ve made that as clear as I can to all the medical professionals… so..we shall see…
June 28Jun 28 16 hours ago, Jane said:Put it this way…until a certain aspect of my physical health improves…my MH wont…it will get worse… I’ve made that as clear as I can to all the medical professionals… so..we shall see…I'm so sorry. @Jane ...I hope a doctor treating your physical issue will indeed take you seriously, and treat you holistically, and compassionately.I hope you have a therapist whom is helpful to you?Take gentle care 🩷🐬🐇🍁
June 28Jun 28 Ahh..therapy…I was offered that but I’m not ready…talking about ‘stuff’ just gets me upset. I cant do it,,,I have a video tribunal next week…so I’ll let you know how it goes…
June 29Jun 29 Author 22 hours ago, Jane said:Ahh..therapy…I was offered that but I’m not ready…talking about ‘stuff’ just gets me upset. I cant do it,,,I have a video tribunal next week…so I’ll let you know how it goes…Therapy is really tough. It takes me days to get over a session, but just try whenever you feel ready, good luck for the tribunal.
Sunday at 03:35 PM5 days It's very hard to manage both. ☹️ When I'm in pain I get really depressed/suicidal. 😭
Tuesday at 01:55 AM4 days My pain has been terrible today.Add to my sciatica a two day migraine that has made me quite the miserable person to endure.I am very discouraged that there might not be in sight-I saw a neurosurgeon who said he didn't see the need fjor surgery on my spine.He told me he would have my GP refer me to a pain clinic.In the meantime, today I smiled, passing some beautiful gardens on my street, and derived much comfort in Scripture and prayer.
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